As some of you know, I've been feeling more exhausted these last few months than I did during treatment. All through August I've been counting the days until school begins - so that I could sleep my days away:) I am hoping to get back to work in October so with the first day of school routine for the kids, I decided that I would begin a routine for myself as well - pretending that I was working.
I have managed to get out of bed by 06:00 for three whole days in a row - which I count as a huge success. Unfortunately, I've crashed around 14:00 each day and needed a three hour sleep before I could get up and make supper and do the necessary with the kids in the afternoon. I still insist on counting that as progress - anytime I get up before 10:00 is good these days - and this from someone who rarely slept more than 5 hours out of 24 for the last decade:)
I spoke with the Clemons/ Hazel team about the fatigue and they have assured me that it is nothing to worry about at this stage. Apparently they see this type of thing relatively often with "people like me". I asked for a little clarification on that last phrase and was told that people who really focus on getting through the treatment as well as I did often crash afterwards. Sort of like working your buns off before you go on holiday only to catch a miserable, lingering cold on your second day away from the office. We'll re-assess the fatigue on my next visit at the end of November. If it's still really bad then they'll run some tests but they are so far unconcerned - which is a huge relief.
I told Doc Clemons briefly about Arnaout and he was full of nothing but praise for her surgical skills. He didn't convince me to see her again however and he and I will discuss surgeons in Toronto at our next visit.
I see Dr. Genest, my radiologist on Monday. I'm not expecting anything to flow from that visit - it is really pro forma. My next real hurdle is my return to work which will be gradual (see above re fatigue). While managment was very supportive of me at the outset of my leave, interest in my career seems to have waned considerably and I am not currently feeling the love. I'm sure that we can work it out in the end but things are currently completely in the air and it's rather gnawing at me - I hate things that are unsettled.
As life and health wend their way back to normal, I'm going to wind up the blog. I find that I have less and less to write about that could possibly be of interest. Besides, it's interfering with my napping:)
All my love to everyone. It has been quite a REEDONKULOUS JOURNEY - but one full of love and one that has made me take stock of my life, values and priorities. I am ultimately grateful for what has come to pass and will always remember the lessons.
BLUESFEST!
I have to say that Bluesfest was a bit of a let down. First, I was too tired to go to it every day - and that's a bummer. Ordinarilly I would not only be at BF from open to close every day but I would work either a full day or a half day. This year, despite being off of work, I couldn't even go every day. I missed three days all together and wasn't there until later in the day even when I made it.
I must say however that the Bright Light Social Hour did not disappoint. They were so great that Laurie, Char and I skipped BF to head out to Neat Cafe in Burnstown to see them for the THIRD TIME IN A WEEK!! Tres awesome. I'm now officially a groupie. Check out my photo below of Laurie and I with the smallest guys to come out of Texas!
I must say however that the Bright Light Social Hour did not disappoint. They were so great that Laurie, Char and I skipped BF to head out to Neat Cafe in Burnstown to see them for the THIRD TIME IN A WEEK!! Tres awesome. I'm now officially a groupie. Check out my photo below of Laurie and I with the smallest guys to come out of Texas!
Wishing you a recovering body, wonderful naps (taken as required) and lots of health in the future. Thanks for sharing your experiences with us, I'm sure you've inspired and helped far more people than you realize. Good luck and good health.
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